2018 Wrap Up
2018 has been difficult for us and this December marks the 1 year mark since the diagnosis. Has things gotten better? My mom always ask me oh J must be better now and sleeping better right? No, he’s the same mom. We are still struggling and quite sleep deprived. We still get the bad nights where he is up before the sun rise. Just on the 26, he didn’t sleep till 1am as he struggled to settle in and woke up at 3:30am. Sleep is one of our biggest struggle and that leads to other things such as meltdowns because he is exhausted and self injury because he is frustrated. It is still hard seeing him cry for hours, bang his head on the floor, purposely fall and hurt his knees or foot. I am very doubtful I will get use to this or this will be easier as he age. As a mother, one of the hardest thing is to witness your baby struggle. I think what has improved is that I’m stronger now. Not physically but mentally. I know what to do when he has his meltdown most of the time. Know how to redirect him to something I know will calm him down. It is much easier at home when he has his moments but when I’m outside his strength is starting to surpass me. I know for a fact, I will not be able to just pick him up soon because I’m already struggling. He’s not […]