Happy Birthday my beautiful 4 year old

Posted Leave a commentPosted in Happy

J where do mommy even start? You are such a beautiful soul and when you smile you light up my whole world. There is something about your smile that just makes everything better. I want to wish you a very happy birthday and want to let you know words cannot express my love for you. Mommy is so sorry and wishes there’s more she can do for you when you get into your sad spells. Watching you hurt yourself brings tremendous pain to me more than you can ever imagine. As you are growing, so does your strength and I know those punches must hurt. Whatever frustrates you so much for the need to hurt yourself must be hard. Mommy wishes she can take that away from you and if she could, she would do it as fast as a heart beat. Sometimes, I’m likely the cause of your frustrations because I’m not understanding your way of communication. Please know that I’m trying very hard and please be patient with us. Being non verbal is difficult but together we will learn and find a way of communicating even without words. You’ve come such a long way and I want you to know how very proud we are. Turning 4 means you start school this fall. It’s a big milestone and I’m not sure I’m ready for this one. I know you will figure it all out like you always do and I fully trust that you will but there are […]

If you got a runner, always take extra precaution

Posted Leave a commentPosted in Struggles

The other day as I was walking home from their school I had Jay on my left side near the street and baby girl on my right side. I actually thought of having Jay on the other side but decided it was safer for baby girl should a car run up the curb. You should always have your little one further from the street just in case and I always practice this but when you got more than one kiddo, what do you do? I hold Jay’s hand with all my might most of the time but this little one managed to slip out of my hands. It all happened so fast but I was extra aware of my surroundings for some odd reason that day. I knew there were two cars on both side and I quickly flicked off baby girl’s hand and caught him. He was within arms reach and didn’t get far but I had a very good scare regardless. My daughter held me so tightly I had to flick her off and she fell. It was not a fun scene, I had Jay on the one hand very tightly now and picked up baby girl with my other arm while on my knees. She was scared and crying. The older one was there too and I don’t remember if he was holding her hands but he did say she fell and hit her head. My neighbours was just steps behind us and witnessed the whole thing. […]

2019 One to One Summer Support Worker Reimbursement Fund

Posted Leave a commentPosted in Resources and funding

This fund is available 2 times a year and there is a random selection for all those who apply within the time period. This is my 4th time applying and we were not selected the first three rounds. Hopefully better luck this time. The 2019 One-to-One Summer Support Worker Reimbursement Fund is available to Ontario families of children or youth with ASD who retain the services of a one-to-one support worker for their child to attend a community summer camp or summer program. Maximum reimbursements of $600, per child or youth, (ages 17 or less) will be made to subsidize services purchased between June 24 and August 30, 2019. A minimum of 500 families from across Ontario are expected to receive reimbursements. Reimbursements will be provided based on a random selection made from all eligible applicants who apply between May 6 and May 31, 2019. Process 1. Application: We will accept completed and signed applications from May 6 and May 31, 2019. Your application must include evidence of a clear ASD diagnosis from a professional who is qualified to make the diagnosis (see website for details). 2. Selection: By June 7, 2019, 500 families will be randomly selected and ALL applicants will be informed by letter whether they were selected to receive funds or not. 3. Payment: Autism Ontario will issue cheques to the randomly selected families who have submitted (by no later than September 13, 2019) all original receipt(s) for fees paid by the parent of the child with […]

Thankful my oldest child is so sweet

Posted Leave a commentPosted in Happy, Sleeping Issues, The others

Lack of sleep is a norm for us and I’ve gotten used to the point where one of our child could be screaming bloody murder and the either hubby or I are too exhausted to hear. The oldest had a bad nightmare yesterday night and was screaming. I walked in and after comforting him, he told me the sweetest thing. Well first he claims he called us 300 times and how no one heard him. Then he said he was about to go into J’s room but he didn’t because he didn’t want to wake J. He actually walked out of his bed and went to J’s door but didn’t want to wake him and went back to cry in bed. I felt horrible but the same time so happy. This 6 year old knows not to wake his brother because he has sleeping issues and will stay up for hours. Despite big brother’s effort, J still woke up later and cried for 4 hours. Why must it be so hard for him to stay asleep. His little body is so exhausted from being up and bawling his eyes out. Hope he’s not getting sick. Can’t have him sick again. Last sickness was a scene from horror movies where we got in the bathtub to give meds because he pukes at the sight of medicine. I can’t help but to think maybe I’m putting too much pressure on the oldest one where he feels the need to protect his brother. […]

New Sensory Behaviours

Posted Leave a commentPosted in Struggles

Sorry it’s been a while since I posted, been just really busy with summer programs for the kids and getting J into school for September. Sad to say, one of the funding I was really hoping on getting came back at zero. It’s heartbreaking for me because last year I found out about this fund after a week or so after the deadline and this year even though I marked it on my calendar, it didn’t work out because I submitted an image that is blurry. After resubmitting, the funds was already exhausted. I was sad for a long while but it is what it is. J been doing very good, well good days bad days but overall progressing well. He is really doing well with simple request and sleeping a tad better. Storyboard request is excellent and he is such a smart boy. We got appointment for communication device appointment at Holland Bloorview next month and I’m excited to see what it will bring for him. I’ve notice more sensory behaviours and some of them is kind of scary. He likes to jump off chairs and stairs and everything really. He also seem to like to look up a lot and had a bad accident at the park as he looked up and continued walking and didn’t see the ledge. I think he likes to crash into things as I’ve noticed he likes to roll off the bed onto the floor. I can’t be certain about that behaviour yet […]